Endometriosis ~ Abdominal Pain ~ Endo ~ Scar Tissue ~ Adhesions ~ Infertility ~ Hysterectomy

Thursday, December 26, 2013

Million Woman March for Endometriosis March 13, 2014

Find a group!

 

https://www.facebook.com/groups/MWMFE2014/
Million Woman March for Endometriosis©, is an internationally-coordinated awareness campaign that will occur worldwide in dozens of international capitals, including Amsterdam, Berlin, Buenos Aires, Copenhagen, Dublin, Helsinki, Kingston, Lisbon, London, Madrid, Rome, Stockholm, and Washington, D.C., just to name a few.
With an estimated 176 million women and girls throughout the world still living lives awash in anguish because of this devastating disorder, we believe that an internationally coordinated campaign is absolutely necessary to effect the changes that are needed to overturn the status quo.
Join us in this unprecedented worldwide peaceful demonstration to raise awareness about Endometriosis, Adenomyosis, Fibroids and other related chronic pelvic pain disorders in women…
Thank you 
Shauna Fuller Clarke's B.A.S.E. Foundation 
Promoting awareness and offering support
to victims of Endometriosis
Please visit them

Adhesion Related Disorder International Human Rights Team IHRT: Teenager speaks out over medical condition that leaves her looking nine months pregnant every time she eats

Adhesion Related Disorder International Human Rights Team IHRT: Teenager speaks out over medical condition that leaves her looking nine months pregnant every time she eats

Sunday, December 22, 2013

Happy Holidays!

Endure what you must and enjoy all you can. Do not let this disease steal one more holiday from you.


Wishing you all the best this holiday season!

Why does my hip hurt so bad?

Ok this is plausible...but what doc can I convince OR is it from that evil lupron..eating my bones away?

2012  
Japanese journal of radiology
  
  
  
  
  
  
We report the case of a young woman with recurrent unilateral hip pain. A polylobular cystic mass was found in the right adductor space. Magnetic resonance imaging (MRI) revealed a polynodular mass migrating from the intrapelvic region along the obturator nerve. Because of a history of cyclic pain and the characteristics on MRI (hypointense rim and spots of spontaneous hyperintense signal on T1-weighted images), an endometrioma was suspected. The diagnosis of endometriosis was later confirmed through ultrasound-guided biopsy.
(Waer et al. 2012)
Waer P, Samson I, et al. (2012). Perineural spread of endometriosis along the obturator nerve into the adductor thigh compartment. Jpn J Radiol 30 (5): 446-9.
PMID: 22350637  DOI: 10.1007/s11604-01

http://www.torna.do/s/Perineural-spread-of-endometriosis-along-the-obturator-nerve-into-the-adductor-thigh-compartment/?x=5&y=1

Tuesday, December 17, 2013

Endometriosis Expert Dr. Tamer Seckin Stresses Importance of Early Detection and Awareness of Disease


Co-founder of the Endometriosis Foundation of America, Dr. Seckin, released a patient success story to highlight the importance of early discovery and awareness of endometriosis within the medical community.
New York, New York (PRWEB) December 04, 2013
Accredited gynecologic surgeon, Dr. Tamer Seckin recently released a patient testimonial about Angela, a woman who went through a decade of pain without proper diagnosis until she met Dr. Seckin, who performed a triple bowel resection on her. Dr. Seckin believes not only is early detection of endometriosis imperative, but there needs to be a strong accountability within the medical field to provide quality treatment to women suffering with the disease.
From Dr. Seckin’s past patient experience, many women suffering from endometriosis face delays in treatment because of the inexperience of the gynecologists and doctors who initially work with them.
A 2011 study by the World Endometriosis Research Foundation Global Study of Women’s Health found evidence that endometriosis “impairs the work productivity and quality of life across countries and ethnicities, yet women continue to experience diagnostic delays in primary care.”
With these delays, the disease affects women during the prime years of their lives: when they are beginning careers, building relationships, and trying to potentially start families. By unknowingly waiting to treat symptoms, often times, such as in Angela’s case, the treatment procedures are much more severe.
Angela not only had endometriosis removed in her rectum, in her colon and in her intestines, but she also needed her appendix removed. The disease took a lot from her physical life and required her to have several procedures, such as a hysterectomy, that could have been prevented if she was originally referred to a qualified surgeon.
“Often women think the pain they are experiencing is part of normal life,” said Dr. Seckin. “I want to not only help these women, but educate them so that they can educate their friends. A precedent should be set within the medical field that if you suspect endometriosis in a patient, you need to send that patient to a trained excision specialist.”
Angela is now “Endostrong” and an advocate for proper diagnosis and treatment of endometriosis. To read how Dr. Seckin saved Angela’s life, visit: http://www.drseckin.com/blog/angelas-story-a-triple-bowel-resection-saved-my-life.
About Dr. Seckin:
Dr. Tamer Seckin has focused on the surgical treatment of endometriosis for decades and today is a well-regarded expert in the field. His New York City based practice is known for its warm, dedicated and continuous patient care, exceptional skill and thoroughness. As a leading endometriosis specialist and laparoscopic surgeon, Dr. Seckin understands the frustration that affected individuals may feel. Dr. Seckin's treatment approach is the gold standard--Advanced Laparoscopic Excision Surgery (deep removal of all the disease). He performs almost scar-free surgery, which means less pain and cosmetically acceptable results.

I wonder if a good adhesion specialist skilled in adhesiolysis could have forgone the triple bowel resection. I wonder how many nasty docs asked this poor woman 
"Why are you not taking Lurpon"  ( personal aside, docs who still prescribe lurpon should be forced to take a course before they can prescribe it to patients...that would be the end of that!)