Happy New Year!

Hoping this is your year to shine! 

Million Woman March for Endometriosis March 13, 2014

Find a group!

 

 Visit the Facebook page!

Million Woman March for Endometriosis©, is an internationally-coordinated awareness campaign that will occur worldwide in dozens of international capitals, including Amsterdam, Berlin, Buenos Aires, Copenhagen, Dublin, Helsinki, Kingston, Lisbon, London, Madrid, Rome, Stockholm, and Washington, D.C., just to name a few.

With an estimated 176 million women and girls throughout the world still living lives awash in anguish because of this devastating disorder, we believe that an internationally coordinated campaign is absolutely necessary to effect the changes that are needed to overturn the status quo.

Join us in this unprecedented worldwide peaceful demonstration to raise awareness about Endometriosis, Adenomyosis, Fibroids and other related chronic pelvic pain disorders in women…

Thank you 

Shauna Fuller Clarke's B.A.S.E. Foundation 

Promoting awareness and offering support

to victims of Endometriosis

Please visit them

http://basejamaica.com/

Adhesion Related Disorder International Human Rights Team IHRT: Teenager speaks out over medical condition that leaves her looking nine months pregnant every time she eats

Adhesion Related Disorder International Human Rights Team IHRT: Teenager speaks out over medical condition that leaves her looking nine months pregnant every time she eats

Happy Holidays!

Endure what you must and enjoy all you can. Do not let this disease steal one more holiday from you.

Wishing you all the best this holiday season!

Why does my hip hurt so bad?

Ok this is plausible...but what doc can I convince OR is it from that evil lupron..eating my bones away?

Perineural spread of endometriosis along the obturator nerve into the adductor thighcompartment

2012   Japanese journal of radiology

We report the case of a young woman with recurrent unilateral hip pain. A polylobular cystic mass was found in the right adductor space. Magnetic resonance imaging (MRI) revealed a polynodular mass migrating from the intrapelvic region along the obturator nerve. Because of a history of cyclic pain and the characteristics on MRI (hypointense rim and spots of spontaneous hyperintense signal on T1-weighted images), an endometrioma was suspected. The diagnosis of endometriosis was later confirmed through ultrasound-guided biopsy.

		(Waer et al. 2012)
		Waer P, Samson I, et al. (2012). Perineural spread of endometriosis along the obturator nerve into the adductor thigh compartment. Jpn J Radiol 30 (5): 446-9.

PMID: 22350637  DOI: 10.1007/s11604-01 http://www.torna.do/s/Perineural-spread-of-endometriosis-along-the-obturator-nerve-into-the-adductor-thigh-compartment/?x=5&y=1

Harry Reich Sex and Endometriosis

Endometriosis Expert Dr. Tamer Seckin Stresses Importance of Early Detection and Awareness of Disease

Co-founder of the Endometriosis Foundation of America, Dr. Seckin, released a patient success story to highlight the importance of early discovery and awareness of endometriosis within the medical community. New York, New York (PRWEB) December 04, 2013 Accredited gynecologic surgeon, Dr. Tamer Seckin recently released a patient testimonial about Angela, a woman who went through a decade of pain without proper diagnosis until she met Dr. Seckin, who performed a triple bowel resection on her. Dr. Seckin believes not only is early detection of endometriosis imperative, but there needs to be a strong accountability within the medical field to provide quality treatment to women suffering with the disease. From Dr. Seckin’s past patient experience, many women suffering from endometriosis face delays in treatment because of the inexperience of the gynecologists and doctors who initially work with them. A 2011 study by the World Endometriosis Research Foundation Global Study of Women’s Health found evidence that endometriosis “impairs the work productivity and quality of life across countries and ethnicities, yet women continue to experience diagnostic delays in primary care.” With these delays, the disease affects women during the prime years of their lives: when they are beginning careers, building relationships, and trying to potentially start families. By unknowingly waiting to treat symptoms, often times, such as in Angela’s case, the treatment procedures are much more severe. Angela not only had endometriosis removed in her rectum, in her colon and in her intestines, but she also needed her appendix removed. The disease took a lot from her physical life and required her to have several procedures, such as a hysterectomy, that could have been prevented if she was originally referred to a qualified surgeon. “Often women think the pain they are experiencing is part of normal life,” said Dr. Seckin. “I want to not only help these women, but educate them so that they can educate their friends. A precedent should be set within the medical field that if you suspect endometriosis in a patient, you need to send that patient to a trained excision specialist.” Angela is now “Endostrong” and an advocate for proper diagnosis and treatment of endometriosis. To read how Dr. Seckin saved Angela’s life, visit: http://www.drseckin.com/blog/angelas-story-a-triple-bowel-resection-saved-my-life. About Dr. Seckin: Dr. Tamer Seckin has focused on the surgical treatment of endometriosis for decades and today is a well-regarded expert in the field. His New York City based practice is known for its warm, dedicated and continuous patient care, exceptional skill and thoroughness. As a leading endometriosis specialist and laparoscopic surgeon, Dr. Seckin understands the frustration that affected individuals may feel. Dr. Seckin's treatment approach is the gold standard--Advanced Laparoscopic Excision Surgery (deep removal of all the disease). He performs almost scar-free surgery, which means less pain and cosmetically acceptable results. http://www.prweb.com/printer/11340239.htm I wonder if a good adhesion specialist skilled in adhesiolysis could have forgone the triple bowel resection. I wonder how many nasty docs asked this poor woman  "Why are you not taking Lurpon"  ( personal aside, docs who still prescribe lurpon should be forced to take a course before they can prescribe it to patients...that would be the end of that!)

Adhesion Related Disorder International Human Rights Team IHRT: Karen Steward in your search for relief from Adhesion's and Adhesion Related Disorder

Adhesion Related Disorder International Human Rights Team IHRT: Karen Steward in your search for relief from Adhesion's and Adhesion Related Disorder

I bet you say that to all the girls with Endometriosis...

Fertil Steril. 2013 Jan;99(1):212-8. doi: 10.1016/j.fertnstert.2012.08.039. Epub 2012 Sep 15.

Attractiveness of women with rectovaginal endometriosis: a case-control study.

Vercellini P, Buggio L, Somigliana E, Barbara G, Viganò P, Fedele L.

Source

Clinica Ostetrica e Ginecologica, Istituto Luigi Mangiagalli, Università degli Studi, and Fondazione IRCCS Ca' Granda-Ospedale Maggiore Policlinico, Milan, Italy. paolo.vercellini@unimi.it

Abstract

OBJECTIVE:

To evaluate physical attractiveness in women with and without endometriosis.

DESIGN:

Case-control study.

SETTING:

Academic hospital.

PATIENT(S):

Three hundred nulliparous women.

INTERVENTION(S):

Assessment of attractiveness by four independent female and male observers.

MAIN OUTCOME MEASURE(S):

A graded attractiveness rating scale.

RESULT(S):

A total of 31 of 100 women in the rectovaginal endometriosis group (cases) were judged as attractive or very attractive, compared with 8 of 100 in the peritoneal and ovarian endometriosis group and 9 of 100 in the group of subjects without endometriosis. A higher proportion of cases first had intercourse before age 18 (53%, 39%, and 30%, respectively). The mean ± SD body mass index in women with rectovaginal endometriosis, in those with other disease forms, and in those without endometriosis was, respectively, 21.0 ± 2.5, 21.3 ± 3.3, and 22.1 ± 3.6. The median (interquartile range) waist-to-hip ratio and breast-to-underbreast ratio were, respectively, 0.75 (0.71-0.81), 0.76 (0.71-0.81), and 0.78 (0.73-0.83), and 1.15 (1.12-1.20), 1.14 (1.10-1.17), and 1.15 (1.11-1.18).

CONCLUSION(S):

Women with rectovaginal endometriosis were judged to be more attractive than those in the two control groups. Moreover, they had a leaner silhouette, larger breasts, and an earlier coitarche.

Copyright © 2013 American Society for Reproductive Medicine. Published by Elsevier Inc. All rights reserved.

____________________________________________

1. Women With Endometriosis More Attractive - Endometriosis Study ...

   www.cosmopolitan.com/.../endometriosis-makes-women-more-attractive‎
   

   
   

   Nov 28, 2012 - Scientists now say that women suffering from endometriosis are moreattractive than women who don't have it.
2. ____________________________________________________
3. 
   

   1. Women with severe endometriosis may be more attractive | Fox News

      www.foxnews.com/.../women-with-severe-endometriosis-may-be-more-a...‎
      

      
      

      by K Rowan - ‎2012

      Sep 21, 2012 - Observing that women with the most severe form of endometriosis happen to be unusually attractive, researchers in Italy speculate that the ...
   2. Hmmmmmmm.....I'm hardly flattered.
   3. 
      

Pesticides Linked to Endometriosis Risk

By NICHOLAS BAKALAR

Why some women and not others get endometriosis — the growth of uterine tissue outside the uterus that can cause pain and infertility — is not known, but researchers have come up with one possible contributing factor: pesticide poisoning.

Scientists studied 248 women with surgically confirmed endometriosis and 538 healthy controls. They measured blood levels of two pesticides, mirex and beta HCH, which persist in some fish and dairy products even though their use in the United States has been banned for decades. The studyappears online in Environmental Health Perspectives.

Read more: http://well.blogs.nytimes.com/2013/11/05/pesticides-linked-to-endometriosis/?_r=0

The Role of DJ-1 in the Pathogenesis of Endometriosis

Some light reading...

PLoS One. 2011; 6(3): e18074.

Published online 2011 March 21. doi:  10.1371/journal.pone.0018074

PMCID: PMC3061880

The Role of DJ-1 in the Pathogenesis of Endometriosis

Priyanka Rai and Sisinthy Shivaji*

Jean-Marc Vanacker, Editor

Author information ► Article notes ► Copyright and License information ►

Abstract

Background

Endometriosis is an estrogen-dependent disease causing pelvic pain and infertility in 10% of reproductive-aged women. Despite a long history of the disease the pathogenesis of endometriosis is poorly understood. It is known that the expression of several proteins is either up or down regulated during endometriosis, but their precise role remains to be determined. DJ-1 is one such protein that is upregulated in eutopic endometrium of women having endometriosis suggesting that DJ-1 may be involved in the pathogenesis of endometriosis

Link to the rest: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3061880/

Thanks to U.S. National Library of Medicine

WHAT IF ENDOMETRIOSIS WAS A MEN’S HEALTH ISSUE?

The world would be a different place!
JORDAN DAVIDSON

As a health journalist and a co-founder of Endo Warriors, a support organization for women with endometriosis, I often get asked “what is endometriosis?”

Which is funny since it is estimated that 176 million women worldwide have endometriosis and yet no one knows about this global health issue.

http://www.hormonesmatter.com/endometriosis-mens-health-issue/

Visit Endo Warriors - https://www.facebook.com/endowarriorssupport